The resources below can help you connect with other people affected by hereditary ATTR (hATTR) amyloidosis and learn more about the condition.


Educational Resources

Your health and hereditary ATTR amyloidosis

A brochure to learn more about hATTR amyloidosis

Our hATTR amyloidosis journey

A collection of personal experiences from people living with hATTR amyloidosis

Family Resources

Your family and hereditary ATTR amyloidosis

A brochure to help guide important discussions with family and loved ones

Family health tree

A tool to help keep track of your family history

Information and Support Groups

Amyloidosis Alliance logo

Amyloidosis Alliance is an international umbrella patient advocacy organisation, aiming to raise awareness and improve the quality of care of amyloidosis patients.

Click here to visit their website to find out more about the work they are doing to help patients across Europe and beyond.

“Always remember that you are coming from a place of care and concern for your family member.”

Tootie Bueser, Cardiac Genetic Nurse
Hear a Cardiac Genetic Nurse's Advice on Talking to Your Family About Your Diagnosis

Patient Stories