Video library

Hear from people about their experiences living with hereditary ATTR (hATTR) amyloidosis

Why we need to Bridge the Gap in awareness of hATTR amyloidosis

Jean-Christophe Fidalgo, Amyloidosis Alliance

Jean-Christophe Fidalgo, Amyloidosis Alliance, and Koenraad Verhagen, The Stichting Amyloïdose Nederland, on the value of sharing patients' stories

Experiences of those living with hereditary ATTR (hATTR) amyloidosis

Catilena's story: looking to the future
Catilena's story: looking to the future
Sophia’s Story: Experience with Genetic Testing
Sophia’s Story: Experience with Genetic Testing
Sophia's story, UK
Sophia´s story, UK
Catilena's story, Spain
Catilena's Story, Spain
Roland's story, Germany
Roland's story, Germany
David's hATTR amyloidosis story, U.K.
David's story, U.K.
Jean-Christophe's story, France
Jean-Christophe's story, France
Philip's story, the Netherlands
Philip's story, the Netherlands
Vitor's story, Portugal
Vitor's story, Portugal
Andreas's story, Sweden
Andreas's story, Sweden

Tips from a cardiac genetic nurse

The latest genetic testing guidelines
The latest genetic testing guidelines
Talking to family about a diagnosis
Talking to family about a diagnosis
Dealing with a diagnosis of hATTR amyloidosis
Dealing with a diagnosis of hATTR amyloidosis
When a family member is at risk of hATTR amyloidosis
When a family member is at risk of hATTR amyloidosis
The importance of talking about hATTR amyloidosis
The importance of talking about hATTR amyloidosis
NP-UK-00261 | July 2023