What best describes your hereditary ATTR (hATTR) amyloidosis experience?
hATTR amyloidosis is a rare, hereditary condition that can progress rapidly
Your health and hereditary ATTR amyloidosis
An updated booklet to learn more about hATTR amyloidosis - now also called ATTRv amyloidosis
Hear about David’s journey to diagnosis
Start creating your support system
Our hATTR amyloidosis journey
A collection of personal experiences from people living with hATTR amyloidosis
Learn how you can best support your loved one
Your family and hereditary ATTR amyloidosis
A helpful guide for both those with hATTR amyloidosis and their caregivers
Roland and his wife Nicky share their experience of living with hATTR amyloidosis
Learn how the condition occurs, what the symptoms are, and how it may affect your family
Read about the next steps after diagnosis and tips on how to talk to your family
Information and Support Groups
Amyloidosis Alliance is an international umbrella patient advocacy organisation, aiming to raise awareness and improve the quality of care of amyloidosis patients.
UK ATTR Amyloidosis Patients’ Association
info@ttramyloidosis.uk
UK ATTR Amyloidosis Patients' Association acts to provide extensive patient information and support.
amymattrs@gmail.com
ATTR Amyloidosis All Ireland Support Group offers support to patients affected by Hereditary ATTR Amyloidosis or Wild Type ATTR Amyloidosis. We are committed to raising awareness to ensure people are diagnosed and have access to available treatments at the earliest opportunity.
STAR: Symptom Tracker-appen har inte ett medicinskt syfte. Den är utformad för att dokumentera användarnas symptom, hur de förändras med tiden och deras inverkan på användarnas välbefinnande och livsstil. Appen är inte avsedd för sjukdomsövervakning eller symptomkontroll. Vi rekommenderar användarna att prata med sin läkare för att kontrollera symptom. Dessutom kan STAR: Symptom Tracker-appen inte ställa några medicinska diagnoser. Användare uppmanas att samråda med en läkare om de är oroliga över sin hälsa.
