What best describes your hereditary ATTR (hATTR) amyloidosis experience?
hATTR amyloidosis is a rare, hereditary condition that can progress rapidly
Your health and hereditary ATTR amyloidosis
An updated booklet to learn more about hATTR amyloidosis - now also called ATTRv amyloidosis
Hear about David’s journey to diagnosis
Start creating your support system
Our hATTR amyloidosis journey
A collection of personal experiences from people living with hATTR amyloidosis
Learn how you can best support your loved one
Your family and hereditary ATTR amyloidosis
A helpful guide for both those with hATTR amyloidosis and their caregivers
Roland and his wife Nicky share their experience of living with hATTR amyloidosis
Learn how the condition occurs, what the symptoms are, and how it may affect your family
Read about the next steps after diagnosis and tips on how to talk to your family
Information and Support Groups
Amyloidosis Alliance is an international umbrella patient advocacy organisation, aiming to raise awareness and improve the quality of care of amyloidosis patients.
UK ATTR Amyloidosis Patients’ Association
info@ttramyloidosis.uk
UK ATTR Amyloidosis Patients' Association acts to provide extensive patient information and support.
amymattrs@gmail.com
ATTR Amyloidosis All Ireland Support Group offers support to patients affected by Hereditary ATTR Amyloidosis or Wild Type ATTR Amyloidosis. We are committed to raising awareness to ensure people are diagnosed and have access to available treatments at the earliest opportunity.
STAR: The Symptom Tracker app does not pursue a medical purpose. It is designed to keep a record of users’ symptoms, how they change over time and their impact on users’ well-being and lifestyle. The app is not intended as a disease monitoring tool or as a symptoms checker. To have symptoms checked, users are advised to talk to their healthcare professional. Furthermore, STAR: The Symptom Tracker app does not make any medical diagnoses. Users are advised to seek the advice of a medical professional if they are concerned about their health.
